The value of collaboration in improving knowledge on rare diseases.
نویسنده
چکیده
enshrined in the global TREAT-NMD registries (http:// www.treat-nmd.eu/resources/patient-registries/overview) to which the Canadian registry is an active contributor. Ensuring that patients with rare diseases get access to the best quality diagnosis and care presents challenges that are best addressed by networking and sharing of resources. It is good to see this concept bear fruit in the paediatric neuromuscular community in Canada.
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ورودعنوان ژورنال:
- The Canadian journal of neurological sciences. Le journal canadien des sciences neurologiques
دوره 38 3 شماره
صفحات -
تاریخ انتشار 2011